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The campaign for a Yes vote at this year’s referendum on legalising medical aid in dying has been boosted by the launch of a new organisation called Yes for Compassion, dedicated to educating voters on the issue.
The End-of-Life Choice Society, which has campaigned for a law change for more than 40 years, welcomed the new group that is backed by many prominent New Zealanders, including Sir Geoffrey Palmer, Dame Margaret Sparrow, Dame Iritana Tǡwhiwhirangi and Professor Andrew Geddis.
Matt Vickers, former husband of Lecretia Seales, is supporting the group and has posted on its website www.yesforcompassion.org.nz a moving letter he wrote to his late wife this month on the fifth anniversary of her death.
New Zealanders will vote at the September 19 general election on the End of Life Choice Act passed by Parliament last December, which will allow terminally ill patients to get a doctor’s help to end their suffering.
Dr Libby Smales, a former hospice doctor and spokesperson for Yes for Compassion, said it was formed to ensure New Zealanders have all the facts they need to make an informed yes decision. “Some of us still suffer unbearably as we die,” she said. ”Passing this Act will give dying Kiwis a choice. It will allow us to choose to end suffering that is unbearable in the final stages of life and to die peacefully.”
Dr Mary Panko, President of the End-of-Life Choice Society, said: “Reliable opinion polls over the last 20 years show that an average of 68.3% of voters want a law change.
“One-third of doctors surveyed in 2018 supported it and others say they will join them once the new law is enacted. And 67% of nurses favoured it in Auckland University research in 2017.”
The Yes for Compassion website includes two videos of New Zealanders living with terminal illnesses who urge fellow Kiwis to vote Yes for them. It invites people to make their own short videos explaining why they support end of life choice.
For further information:
Dr Libby Smales email@example.com 021 326 383
Dr Mary Panko firstname.lastname@example.org 027 419 7802
Peace. Closure. Relief.
These are the words medical oncologist Dr Cameron McLaren uses to describe the experience of helping terminally ill Victorians end their lives under the Voluntary Assisted Dying (VAD) scheme.
Dr McLaren says: “The cases I’ve been involved in have been overwhelmingly positive. They've relieved suffering and given the family a moment of closure to say goodbye to their loved one.”
We all deserve the right to go gently – with love and dignity, not fear and distress.
Since VAD legislation passed in Victoria, Dr McLaren says he has seen an enormous shift in his patients’ anxiety. Not everyone chooses a legal assisted death, but Dr McLaren says the palliative effect of having the right to do so is profound.
“The partner of one patient told me, ‘He perked up so much. He feels he's being listened to and respected. He has hope he won’t be forced to live through something he doesn't want’.
“It's a great relief to people who are facing the great unknown. Not knowing how you will die is very frightening. Now people have the comfort of knowing they can have some control.”
Lecretia Seales with her husband Matt Vickers in 2011, a few days after she was diagnosed with brain cancer. Photo / supplied, file
Today marks the fifth anniversary of the day you were taken from me, and the day you received the ruling you would not have a choice about how you would die. So much has happened since then that you do not know about and that I wish you had been able to see. You will never know how much of a difference you made. And you'll never know how much I've missed you.
I got married again like you hoped I would. It was difficult for a while, opening up to someone else after losing you. But I did find someone and she is extraordinary. You would like her. We have a daughter now, too. It hurts to know how much you wanted to have a child with me, but I think you'd still be happy for me now if you could see me. I hope you would be proud of the man I've become.
READ MORE »
By Jessica Young
The University of Otago's Jessica Young interviewed 14 terminally ill people around NZ about what a good death meant for them. Here she makes a case for assisted dying based on what they told her.
Covid-19 has brought death to the forefront of our minds and prompted us to think about what a good death is in these new circumstances.
Until now, most people haven’t been confronted with their own mortality much, despite death being the common denominator that unites all living beings. It doesn’t end there; dying is on the agenda of this year’s election.
New Zealanders are going to vote whether to ratify the End of Life Choice Act at the election. If the referendum passes, it would allow a person with a terminal illness with a life expectancy of less than six months, who is in an advanced state of irreversible decline in capability, is experiencing unbearable suffering and is of sound mind, to make a voluntary request for a choice over how and when they die.
One of the major concerns with assisted dying is that people who have chosen to die may have gone on to live longer or change their minds about dying at that time. From my research with dying people, what I found was that they all said they would know if and when the time was right for them to choose to die. They thought they can, and should, be trusted to know what’s right and wrong for them when it comes to end of life decision-making.
I was fortunate to interview 14 New Zealanders from around the country, of various ages, backgrounds and beliefs, who have a limited life expectancy due to illnesses such as cancer, chronic lung disease, auto-immune disease, and motor neurone disease. These people have given a lot of thought to their own mortality and what a good death means to them.
They wanted the option of assisted dying to guarantee they wouldn’t suffer at the end of their lives. “When there is nothing left but suffering, I want the choice,” said one man with motor neurone disease. Assisted dying shouldn’t be confused with wanting to die or suicide. These people were already dying. As one woman dying of cancer put it, “I just want to hang in there until I can’t, and then I want to have a peaceful end”.
The people I interviewed have been through so much already – multiple treatments, intense pain, nausea, surgery, declining function, trouble breathing, plus shrinking physical and social worlds. The interviewees said assisted dying was the compassionate choice. As an upside of these difficult experiences, people came to know themselves in a deeper way and what they could tolerate. “You should have the choice of when enough is enough,” another man with motor neurone disease said. Many emphasised they were of sound mind to make this decision.
What makes each person’s life worth living, their purpose, their own version of a good life and a good death, and the important bit in between - dying, is unique. To my interviewees, this means we should each be able to decide what is right for us in accordance with our views on life, so long as it doesn’t harm anybody else. They expected tight regulations to make sure the system was safe for everyone. Deciding if and when to die is not a decision the dying will make lightly.
My views on access to assisted dying are that it should only be made available to terminally ill people who have freely made this decision, have access to, or at least offered, the option of care that meets their needs, and who have a sustained wish to hasten their death.
Motivated by compassion, I support terminally ill people who want the option to hasten their death to relieve their suffering. On behalf of the people I interviewed, I encourage you to do the same. Having looked closely at the international data, I’m confident a system, based on the End of Life Choice Act, can be designed to ensure assisted dying can be managed safely.
Source: Brisbane Times
A parliamentary committee has recommended Queensland legalise voluntary assisted dying for adults with advanced terminal medical conditions.
The report, tabled to the Queensland Parliament on Tuesday, made 21 recommendations about how the state government should legislate voluntary euthanasia.
Voluntary assisted dying should be legalised in Queensland, the committee says.
However, it remains unclear whether Premier Annastacia Palaszczuk will introduce new laws before the October 31 election, because of the coronavirus pandemic.
The Premier's office said Ms Palaszczuk's focus was "100 per cent on the state's response to COVID-19".
The committee, chaired by Labor MP Aaron Harper, began its inquiry in November 2018 and accepted 4719 written submissions, held 34 hearings and heard evidence from 502 witnesses.
It recommended a person would need to be diagnosed by a medical practitioner as having an advanced and progressive terminal, chronic or neurodegenerative medical condition to be covered.
Access should also be limited to people with "decision-making capacity" and the person would need to be assessed by two qualified medical practitioners.
The committee recommended the state government review the scheme in three years to ensure legislation was working as expected.
Victoria passed voluntary assisted dying laws in 2017 and Western Australian became the second state to legalise the practice late last year.
The committee of MPs, three from Labor, two from the LNP and one from the Greens, found that, on balance, the Queensland community and health practitioners were supportive of legislating for voluntary assisted dying.
"Tragically, on average around once every four days, someone suffering from a terminal or debilitating condition suicides in Queensland," the report read.
"It remains an option of last resort for people to bring on the end of their lives. Most (62 per cent) of these suicide victims are aged over 60 and almost three-quarters (72 per cent) are males."
Television presenter Andrew Denton flew to Brisbane late last year to convince the Premier to introduce voluntary assisted dying laws before the next election, in case the LNP came to power.
Mr Denton, who became an advocate for voluntary euthanasia after watching his father die a painful death from heart failure, believes there is little chance of a conservative Queensland government pushing the legislation through.
Greens MP Michael Berkman, a member of the committee, agreed.
“The LNP has made clear they oppose VAD, and we can’t risk this issue being put off indefinitely if there is a change of government in October," he said.
"This is yet another reason why the Premier must recall Parliament and ensure it sits as regularly as possible this year, so we can all get on with our jobs."
Queensland Parliament was scheduled to sit this week but under new powers, the government pushed back the next sitting to April 28.
The new powers, rushed through earlier this month, gave Speaker Curtis Pitt the power to suspend sittings until September 17.
Even if the laws were passed this year, the committee said it would take about 18 months
to set up any scheme.
Former Brisbane lord mayor Clem Jones left millions of dollars in his will to drive a campaign to legalise voluntary euthanasia in Queensland.
Clem Jones Trust chair David Muir said laws ideally should be drafted and debated in the remaining months of this Parliament and not ignored until after the October 2020 state election.
"We recognise that the State Parliament has scaled back its sitting schedule because of the coronavirus, but other vital issues like VAD should still be addressed," he said.
"Queenslanders expect swift and bipartisan support for the passage of any new laws related to battling the current virus emergency, meaning MPs could devote appropriate time to considering new VAD laws."
Cherish Life Queensland said the state should instead pursue further resourcing for palliative care services rather than the "reckless and dangerous" legislation.
Congratulations to our long-standing member Dame Margaret Sparrow, who was presented with the Ryman Senior New Zealander of the Year award in February. This recognises Dr Sparrow for her decades of service to the field of sexual health and reproductive rights for men and women.
She is equally active in support of voluntary assisted dying and was out on the Petone foreshore on market day recently chatting to people and handing out information leaflets carrying the website address www.referendum.govt.nz This is the site where voters can read the contents of the End of Life Choice Act before they vote on it at the referendum on 19 September. She wants them to be well-informed.
She is also a member of the Doctors’ Group that is part of the End of Life Choice Society and says, ”I think those of us who support end-of-life choice need in turn to have the support of a group of doctors that firmly believes in it, because there is so much opposition to it from other quarters.”
Her support is enormously appreciated.
Seventy-two percent of Māori say they will vote in support of the End of Life Choice Act at this year's referendum, according to a new poll revealed by The Hui on Sunday.
The has been controversial, with MPs casting conscience votes on whether or not the Act - which would legalise euthanasia under strict circumstances - should progress.
For Māori MPs, one of the most divisive discussion points was whether or not assisted euthanasia is a transgression of tikanga Māori.
The Hui's poll, which was undertaken by Horizon Research, shows that 58 percent of respondents did not believe the End of Life Choice Act was incompatible with tikanga Māori, and 55 percent felt that for the terminally ill, choosing to die was an act of tino rangatira/self determination.
The poll surveyed 543 Māori and has a margin of error of ±4.3 percent.
To discuss the implications of assisted euthanasia for Māori, The Hui's Mihingarangi Forbes spoke with Hāpai Te Hauora CEO Selah Hart, Anglican minister Reverend Chris Huriwai, Cantebury University senior lecturer Te Hurinui Clarke and Māori lawyer and advocate Kingi Snelgar.
This is the first of a number of posts we'll be sharing this year to dispel myths about the End of Life Choice Act and giving you facts you can share with others.
Let’s look at the false negatives put forward by the opposition, starting in this post with the concept of 'vulnerable’ and who our opponents consider vulnerable. These include:
This list shows that our opponents want EVERYONE excluded. In other words - no medically assisted dying for anyone.
One last thought – at the moment terminally ill people are having treatment decisions, such as terminal sedation, made for them by family members and doctors, without any safeguards being considered.
SPREAD THE WORD – and encourage others to visit our website www.eolc.org.nz.
A new study has dispelled concerns people who choose euthanasia are driven by social or economic vulnerability, researchers say.
The average age of people who received euthanasia in Ontario was 74.4, versus 77 for all people who died in the province during the study period.
The research, published in the Canadian Medical Association Journal, found those who accessed euthanasia tended to be younger, wealthier, more likely to be married and far less likely to live in an institution than members of the general public who died during the study period.
Of the 2241 people who chose to die with medical assistance in the Canadian province of Ontario between June 2016 and October 2018, 74 per cent were receiving palliative care from a physician or nurse, according to the study.
This suggested a request for euthanasia was unlikely to be driven by social or economic vulnerability, the researchers said.
New Zealanders will vote in a referendum later this year on whether the End of Life Choice Act should come into force. The Act, put forward by Act MP David Seymour, passed its third reading last November and would give people with a terminal illness the option to access assisted dying subject to certain conditions.
Supporters say people experiencing harrowing pain should have the choice to end their life with dignity, while opponents, including many in the palliative care sector, have argued opening the door to euthanasia could result in the vulnerable, aged and disabled being coerced or feeling pressure to end their lives.
A spokeswoman for Seymour said the Canadian study showed palliative care provision and assisted dying could work together, and the evidence should allay fears vulnerable groups would be at heightened risk.
ACT MP David Seymour has championed the End of Life Choice Bill.
"People who use assisted dying laws are overwhelmingly those who have had choice over their lives, and are now suffering from a terminal illness and seeking choice in how they die."
Nurse Maude Christchurch hospice palliative care service manager Jane Rollings said she strongly opposed the End of Life Choice Act "because I do not wish killing to be legalised in New Zealand".
In her 18 years caring for people with life limiting illness, Rollings could only recall a handful of patients who expressed a desire for euthanasia. "Of these patients, what really drove the desire was fear."
"The acknowledgement of these fears, the acknowledgement of the value and worth of these amazingly brave people's lives and their contribution to society and the gentle guidance through their fears of what might happen to their dying body, alleviated any such desire for intentional death."
There was inequity of access to good palliative care in New Zealand, she said, and there needed to be sufficient funding so it could be provided to everyone who needed it
Medically assisted dying was legalised in Canada in June 2016. As of October, 2018, 6749 Canadians had accessed euthanasia.
For the study, researchers analysed clinical and socioeconomic data from 2241 people in Ontario who received euthanasia and data from all 186,814 people who died during the study period.
Of the people who accessed medically assisted dying, the average age was 74.4 versus 77 in the general population and they were more likely to live in a higher income neighbourhood. Almost two thirds of patients had cancer, 12 per cent had a neurodegenerative disease, 8.5 per cent had cardiovascular disease and 7.5 per cent had respiratory disease.
The researchers said people who chose euthanasia reported physical or psychological suffering as the primary reason, despite three-quarters of patients receiving palliative care. This suggested for many patients requests for euthanasia were not because of poor access to palliative care, they found.
Dr Phil Bagshaw, founder of the Canterbury Charity Hospital but speaking in a personal capacity, said he was not aware of the quality of palliative care or access in Canada but cautioned against drawing any comparisons with New Zealand.
Bagshaw opposed the End of Life of Act. "It's a basic tenant of medicine that doctors are there not to terminate life, but to alleviate distress and cure where they can," he said.
"I think that euthanasia is a mistake, and easy access to good palliative care is the way to go, it's as simple as that."
* An earlier version of this story incorrectly stated this year's referendum question would ask whether euthanasia should be legal in principle. The referendum will ask if the End of Life Choice Act should come into force.
Source: Sydney Morning Herald
It was just after 2pm on October 31 when oncologist Cameron McLaren arrived at Phil Ferrarotto's house on the outskirts of Melbourne to help him die.
Dr McLaren had never administered a fatal drug to a terminally ill patient before. He was struck by the magnitude of what he was about to do.
Oncologist Cameron McLaren CREDIT: JUSTIN MCMANUS
“I had no idea if I was going to be OK with it even up to the point where I put the needle to his arm,” Dr McLaren said. “But there was no question that this was the right thing to do for Phil. It was what he wanted. It was kindness and it was a mercy.”
Phil hadn’t eaten for days. No longer able to digest his medication, the 70-year-old was hooked up to an intravenous morphine drip and sustained by spoonfuls of cola-flavoured ice.
He lay in bed with his daughter Katie and wife Dorrie curled up on either side of him. They cuddled his frail body and watched his chest rise and fall with each painful breath.
His son Glen and son-in-law Ryan came into the room with three glasses of aged Glenfiddich whisky; one for each of them and one for Phil.
They toasted Phil as Dr McLaren gently swabbed the father-of-two’s arm with medicinal alcohol.
Phil Ferrarotto died using assisted dying laws this year.
Dr McLaren found a vein and inserted a cannula. He used the thin tube to inject a sedative medication, before administering an anaesthetic and a muscle relaxant.
Phil began to drift off within minutes of the drugs flowing into his bloodstream. The circle of his family closed in around him. They held his hands and told him how much he was loved. “Be happy,” Phil said, before he took two final, deep breaths.
Dr McLaren has helped two dozen terminally ill Victorians apply for permits to end their lives since the state’s voluntary assisted dying laws came into effect on June 19. Eleven of them have since died using the legislation.
All the patients Dr McLaren has assessed so far were in intolerable pain and often bedridden.
“The number one reason people are doing this tends to be more the existential suffering,” Dr McLaren says. “It is the loss of joy, the fear of losing dignity and the fear of losing autonomy and of being a burden to family.”
Cancer-stricken patients surrender their bodies to years of treatment they know will cause them pain and discomfort, Dr McLaren said. He wants to give people control at the end of their life.
“It is one last decision about their body which is entirely theirs,” he said. “This is something we do for animals and when they get too old and they are suffering greatly. We put them out of their misery and we call it humane. Why shouldn’t we afford humans the same humanity?”
When Dr McLaren first met Phil he was sitting in an armchair in his living room hooked up to an oxygen concentrator. The cancer had spread from his bladder to his lungs and had riddled his bones. Then it invaded his liver, causing his belly to swell and fill with fluid. Opioids prescribed to Phil did little to dull his pain. Each breath was agony.
This kind, strong-willed, clever, retired general manager, who had battled four different kinds of cancers over the past 18 years, was frank and direct.
He told Dr McLaren he wanted to end his own life.
Dr McLaren carefully assessed Phil. He ticked off all the strict criteria; over the age of 18, of sound mind, an Australian citizen with less than six months to live. He referred Phil on to a second doctor who also deemed Phil eligible for the scheme.
Before his application was approved an email from Phil arrived in Dr McLaren’s inbox: "This gives me no pleasure in begging you to end my life, but I have no one else to turn to. I’m struggling with every breath I take and I can’t do it anymore.”
A permit for a doctor-administered death was approved the same day by the Voluntary Assisted Dying Board with Dr McLaren agreeing to administer the fatal dose.
For days after Phil died, Dr McLaren was waiting for the “hammer’s fall”.
"I was really concerned about the fallout for me, personally and emotionally,” he said. “I was concerned about being recognised as ‘that’ doctor and the impact it might have on my family and my work.
“I didn’t question what I did, because in Phil’s case, he was in the last days of his life and he was going to die within 48 to 72 hours. I was able to provide him a death that in his mind was dignified. It didn’t cost him anything. It cost him his suffering.”
The fallout never came.
“It was a lonely experience because there’s no literature review you can read on it,” he said. “It still does feel lonely because there's not a lot of us doing it.”
The night Phil died, Dr McLaren picked up his two year-old daughter when he got home and held her in his arms. His love for his child overwhelmed him and he pressed his face against hers.
“As I was holding her I thought of Phil being surrounded by his family as he took his final breath,” he said.
"Nothing that we could have done would have avoided his death, but we were able to make sure Phil died at home in the arms of the people who loved him most. I thought, yeah, that would be a nice way to go.”
Before he died, Phil wrote a letter to Dr McLaren thanking him for what he was doing:
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